Family support

Your ads will be inserted here byEasy Plugin for AdSense.Please go to the plugin admin page toPaste your ad code OR Suppress this ad slot. Apparently the Rett family support system is very good.  And it should be.  It needs to be.  With so few families going through this, any connection is a much needed[…]

Flying to Texas

The airport was easy enough.  All she wanted to do was run around.  The irony is not lost on me that were going to get her evaluated by Rett specialists and all she wanted to do was run, considering there’s a high likelihood that someday she won’t be able to at all. But she did[…]


Up until today we thought we were dealing with apraxia.  We thought with intensive speech therapy she’d get better.  Up until today we thought we were on the road to recovery.  Instead, we learned we’re on a much worse road – the road from Rett.  Rett Syndrome is a postnatal neurological disorder that leaves many[…]