How did this happen

We knew something was wrong with her.  We’ve known for awhile.  We just didn’t know it was this something and we didn’t know it was this bad.  We’re looking at a lifetime of taking care of her unless a cure is discovered and soon.  Right now we’re very scared and confused.  A little angry, probably.  Read more about How did this happen[…]

Diagnosis

Up until today we thought we were dealing with apraxia.  We thought with intensive speech therapy she’d get better.  Up until today we thought we were on the road to recovery.  Instead, we learned we’re on a much worse road – the road from Rett.  Rett Syndrome is a postnatal neurological disorder that leaves many Read more about Diagnosis[…]