Can’t sleep tonight. I think I’m nervous about what I’m going to learn in Houston. We’re headed to the blue bird center-which is like the mecca for Rett research-on Wednesday but leave for Houston on Monday. We’ve found it’s best Continue Reading
Stress level
It’s hard to keep stress low especially when the unknown is so vast. There’s only so much internet research I can do and not a lot is written in a language laymen can understand. As much as I want to Continue Reading
Games we play with our special girl
Every time I try to play a game that I would play with a typical 3 year old, our little one ignores it. No block building, hide and seeking, peek a booing, puzzle solving, pat a caking, red rovering, freeze Continue Reading
Unreal
As I reflect on 2013 I can’t help but realize how unreal the diagnosis is. As I look forward to 2014, I can only hope the decisions I make for her and for our family lead us on a path Continue Reading
New year’s
I think it’s safe to say I’m welcoming the end of the year with open arms. 2013, while great for me professionally was one of the hardest years imaginable in my personal life. Looking over our application for a clinical Continue Reading