Mad scientist hyphenate / Producer

A blog written by my wife, Jenny.  She is smarter and funnier than I am, so enjoy. When I wake up everyday, I usually pause, take a breath and hope for the best. The truth is we really don’t know what each day will bring. Will Maggie’s arms be out of control today, will she[…]

Special thanks.

When Maggie was first born, our friends Dan and Rachel visited regularly, and made it a point to be a part of Maggie’s life; and Maggie (and the two of us) loves them for it. Her OT still talks about the time that Rachel picked Maggie up and how excited Maggie was to see Rachel.[…]

The little victories

Maggie has days where everything seems to be connecting.  She climbs better, she uses her hands more and she communicates more.  Then there are other days that nothing seems to connect.  This is the Apraxia part of Rett.  We never know what each day will bring but we are learning to enjoy each day just[…]

Butterfly day

One thing that I can always count on with Maggie is that if something doesn’t go as planned, it affects the entire day.  I was alone with Maggie all weekend and thought going to our local children’s museum would be a fun day – plus they were releasing a bunch of butterflies on this day.[…]