There has been a lot of stress and anxiousness preparing for Maggie’s first day of school. Ours not hers. We kept telling Maggie that she was going to be going to school and it was going to be fun. She didn’t really care, but how could Continue Reading
Awareness for Rett
The video’s been shared a lot, so thank you for that. It’s at 110,000 views and it’s been pretty cool to see. (If you haven’t seen it yet – http://bit.ly/Magnoliashope.) I do wish we didn’t have to share it. I Continue Reading
Sharing the video is working
It made it into the Huffington Post – http://www.huffingtonpost.com/2014/08/11/rett-syndrome-video_n_5662406.html?1407771166 It just needs to continue to spread. Thanks for all your support. Here’s the link to the video so you can share it on Facebook, Twitter or whatever other social media Continue Reading
Share this video. Save Magnolia.
In December, our daughter, Magnolia was diagnosed with Rett Syndrome which is a rare neurological disorder. Because of Rett, scoliosis, seizures, feeding tube surgery, loss of mobility, loss of useful hand control and an inability to talk are all things she Continue Reading