My email chain with the school district:

Names have been removed to protect everyone. I sent this first letter to the PT and OT assessor. Hi…, After some consideration, and in part, because I didn’t know I was supposed to have the discussion at the IEP, I feel like I have to strongly disagree with your recommendation of only 120 minutes/year of pt, Read more about My email chain with the school district:[…]

Palm Springs

A couple of weeks ago, we took a little weekend trip to the desert because nothing says relaxing like 109 degree temperatures.  It started out auspiciously with Maggie unable to calm her body, communicate her wants or regulate her body temperature.  The last one was a new discovery.  She’s always run a little hot, but Read more about Palm Springs[…]

October is Rett Awareness Month

We found out October was Rett Awareness month when we first were diagnosed and we’ve been talking about it for months.  What are we going to do?  How will we contribute to Rett Awareness Month? I had grandiose plans, but am glad I’m more or less just a participant in a number of events.  Awareness doesn’t Read more about October is Rett Awareness Month[…]