We got the Eye Gaze Computer!!! After a very hard fought battle with the district, they gave us the communication device Maggie needed. They wanted to help the whole time, there were just a lot of hoops we had to Continue Reading
When Laughter Fills The Room
It’s amazing how much about Rett Syndrome I can forget when Maggie’s in a giggly mood. Her laugh is literal music to my ears and it washes away all of the stress and pain of Rett Syndrome. Knowing that she’s Continue Reading
Diagnosis Anniversary
The anniversary of Maggie’s diagnosis was three weeks ago. I had been reading about other families and how that day is indelibly marked in their minds. Going through the day I didn’t think of it in the same way, in that Continue Reading