Hello family and friends. I’m not sure you knew about this, but I’ve been keeping a video log of Maggie’s progress as well, a vlog if you will. I put up videos of amazing things she’s doing and talk about Continue Reading
Frozen
Frozen has been a bit of a touchstone for us. When it came out and little girls around the world flipped over it, Maggie didn’t care. She’s never been able to sit still for long enough to enjoy a movie and Continue Reading
Back to normal
For the last two months I’ve been back at work which is to say I haven’t been around that much for Maggie. I’ve missed dinners and breakfasts and therapies and school drop offs. I feel like she’s growing up so Continue Reading
FDA Update
Over the past couple of months we have been holding our breaths as results from the FDA trail of a drug formerly known as NNZ-2566 were coming out. This is the drug closest to market for Rett Syndrome and would Continue Reading