YouTube

Your ads will be inserted here byEasy Plugin for AdSense.Please go to the plugin admin page toPaste your ad code OR Suppress this ad slot. Hello family and friends.  I’m not sure you knew about this, but I’ve been keeping a video log of Maggie’s progress as well, a vlog if you will.  I put[…]

Frozen

Your ads will be inserted here byEasy Plugin for AdSense.Please go to the plugin admin page toPaste your ad code OR Suppress this ad slot. Frozen has been a bit of a touchstone for us.  When it came out and little girls around the world flipped over it, Maggie didn’t care.  She’s never been able to[…]

FDA Update

Over the past couple of months we have been holding our breaths as results from the FDA trail of a drug formerly known as NNZ-2566 were coming out.  This is the drug closest to market for Rett Syndrome and would be the first ever treatment of the actual disease.  Over the weekend, the FDA denied[…]