We spent father’s day with my family on the East Coast. We’ve written about it before – how much she enjoys her cousins; and this trip was no different. I think there’s a special bond with family that she understands Continue Reading
Last Day Of School
Year 1 of school is in the books. Hard to believe how difficult a decision it was for us to even send her to school. We were so nervous that she would lose more of her hand function, more of Continue Reading
Connecticut Commie…
A friend from high school interviewed me for her blog. As much as I talk about Rett Syndrome, I’m always grateful when someone else actually asks me to. http://ctcommie.blogspot.com/2015/05/a-fathers-advocacy-for-rett-syndrome.html