For the longest time the letter s was important. It was how she said yes with a long extended “s”. It was how she hissed like a snake. It was how she responded to Brown Bear Brown Bear what do Continue Reading
Bad Night – the movie
I produced a movie that comes out today. It’s called Bad Night. I guess, if I had thought about it at the time, I’d realize the title has some relation to Rett Syndrome and all the bad nights Rett has Continue Reading
Idle Hands
I wish she had idle hands. She doesn’t She has hands that won’t stop moving. At times, like now, they won’t stop moving extremely violently. Right now she can’t control them at all. I watch as she stares at them Continue Reading
Golf tournament
A few weeks ago I went to a golf tournament in Northern California for Rett Syndrome and I made a video about it. It’s a great event, very well run, and I think as a result, I’m going to get Continue Reading