Last year when I reflected on the amount of money we raised collectively, I was proud to have been a part of Maggie’s solution, her hope. This event, which takes place in LA on October 29th this year, is a Continue Reading
An upswing
When Maggie had pneumonia a few months ago I actually thought it wasn’t that bad. She was sick for a month but the pneumonia part only lasted a few days. But soon after the pneumonia was gone, she started experiencing Continue Reading
Science updates
The past couple of weeks have brought some fairly promising news in the Rett Syndrome community. I’ll share it here with links so you can become an amateur geneticist too. 1) Trofenitide – one of the drugs currently in trials Continue Reading
Special Olympics
The Special Olympics were in LA last week. I’d never been; though I have oft times considered volunteering. When we first heard about Rett Syndrome, my dreams of Maggie someday competing in the Olympics quickly faded. I mean, the daughter Continue Reading