Rett is an ever changing mystery – and it’s one we’re constantly trying to solve. Any little thing could be a clue to helping her with some of her symptoms. We obsess over it – just trying to do everything Continue Reading
The Chair
She’s been doing so well for so long that I was starting to feel like we had a handle on it and that we weren’t going to need to adapt her life around Rett Syndrome. I was starting to feel Continue Reading
CBS News
After I posted the video of Maggie talking on her Tobii, a reporter from CBS Local News reached out. She was fascinated by the technology, and after we shared our story, she was relieved, as are we, that we could Continue Reading
The End of Summer
Labor day has always signified the end of Summer for me. Though Maggie started school two weeks ago, it’s still Summer to me until Labor day. Looking back on it, I think we did a good job this summer – Continue Reading
DIY Supplements
In order to keep Maggie at equilibrium, she needs to take a swath of supplements. Currently she’s on 300 MG of Magnesium 5MG B12 Calcium Chewable Kids Chewable Pro Biotic 100 MG Iso-Phos 1100 MG of L-Carnitine 1600 MG Norwegian Continue Reading