I wanted to put a go pro on her and show what it’s like to be Maggie. This was supposed to be a follow up to the communication video from last week. It was supposed to show how engaged she Continue Reading
How to talk to a non-verbal kid
Talking to a non-verbal kid is a complicated endeavor. They can’t talk and so we don’t listen. But what we’ve learned is that they do talk. She doesn’t use words. She doesn’t use hand gestures (consistently) but she does talk. Continue Reading
Rettland Foundation
When Maggie was first diagnosed with Rett, AJ and I were adamant that we would only donate money to find a treatment or cure for Rett. Then we found out there were clinical trials that had started but were having Continue Reading