#TakeThatRett

I see #takethatrett as a rallying cry every now and again.  When someone’s daughter takes a few steps, when they say a few words, when they climb a few stairs.  It’s wonderful to see girls pushing through the hardship that Rett has dealt them.  And considering how Mggie’s been doing lately, slowly getting back to[…]

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The next steps

We looked into all of the medical interventions there were to help understand why suddenly her balance went away and her hyperventilation became uncontrollable.  We couldn’t find anything.  But, my optimism forces me to believe there’s always a solution. So we turned to #TeamMagnolia She hasn’t been able to go to school (more on this[…]

Looking for answers

Thank you to everyone who has reached out or left a comment or sent a note.  We appreciate hearing the words of encouragement.  These last few weeks have been difficult watching Maggie struggle as she has.  But we’re fighters and so is she. In the middle of watching Maggie lose her balance, we also had[…]