Scoliosis, kyphosis and other symptoms causing symptoms?

And now introducing Scoliosis and Kyphosis. Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown. Kyphosis is the excessive outward curvature of the spine, Read more about Scoliosis, kyphosis and other symptoms causing symptoms?[…]

Sk8tr girl Surfer girl

I have a skater girl, surfer girl, extreme sport loving girl. I could not love her more. She may not have all of the abilities, but she has the heart.  Last year, when she asked for a skateboard on her Tobii eyegaze tech computer. I thought she had made a mistake. Hello? Presume competence mom! Read more about Sk8tr girl Surfer girl[…]

My new piece on Maggie’s style

I wrote another article for Rett Girl magazine and I hope you’ll give it a read.  It’s been hard to try to figure out Maggie’s own personal style, since both AJ and I have our own ideas about what style she likes.  But this year, I’m taking her back to school shopping, and she’s picking Read more about My new piece on Maggie’s style[…]

My heart broke, but not for Magnolia

Last week I was speaking with a mom with an older daughter with Rett Syndrome. She was watching Magnolia, turned to me and said.”I hope they find a cure or treatment for her. I’d really hate to see that spark go away.” It wasn’t cruel, it was honest. She has been fundraising and hoping for Read more about My heart broke, but not for Magnolia[…]