Last Day of Pre-K

With Betsy Devos’ hearing making national headlines this week, I thought it’d be helpful to share why a federal focus on special needs education is so important to us.  Maggie “graduated” from Pre-k last summer.  She wasn’t there.  But she graduated.  In fact, she hadn’t been in school since the beginning of April, but she[…]

Take a breath

It’s been awhile since we posted anything here.  After Rett Syndrome Awareness month, we’re emotionally and physically drained.  The event is an intense amount of work, the awareness and videos takes up time too.  On top of that, Maggie’s health is hit or miss – somedays she’s ok, others it’s a real struggle for her[…]

Hang 10

https://www.youtube.com/watch?v=Ol5FO-dh-9E&feature=youtu.be It’s hard to know what’s in the mind of a 5 year old.  It’s harder still when that 5 year old is non verbal.  But when Maggie’s cousins were coming to visit and they all wanted to go surfing, we thought, Maggie would probably like to do that too. In the last few months[…]