It gets easier.

I remember talking to some families when Maggie was first diagnosed who would tell me “it gets easier, though it may not get better.”  I didn’t fully understand what that meant at the time, but I’m starting to now. When Maggie was first diagnosed, it was traumatizing.  The idea that she would have incredible difficulties[…]

Last Day of Pre-K

With Betsy Devos’ hearing making national headlines this week, I thought it’d be helpful to share why a federal focus on special needs education is so important to us.  Maggie “graduated” from Pre-k last summer.  She wasn’t there.  But she graduated.  In fact, she hadn’t been in school since the beginning of April, but she[…]

Take a breath

It’s been awhile since we posted anything here.  After Rett Syndrome Awareness month, we’re emotionally and physically drained.  The event is an intense amount of work, the awareness and videos takes up time too.  On top of that, Maggie’s health is hit or miss – somedays she’s ok, others it’s a real struggle for her[…]