Bubbles thumb

Bubble Burst

Everything that Maggie wants to do is hard for her.  It takes an immense amount of concentration and practice in order for her to accomplish even the most mundane of tasks. She didn’t spontaneously start jumping on a trampoline.  I had to move her legs up and down until she started doing it herself.  She[…]

#TakeThatRett

I see #takethatrett as a rallying cry every now and again.  When someone’s daughter takes a few steps, when they say a few words, when they climb a few stairs.  It’s wonderful to see girls pushing through the hardship that Rett has dealt them.  And considering how Mggie’s been doing lately, slowly getting back to[…]

Magnoliashopelogo

The next steps

We looked into all of the medical interventions there were to help understand why suddenly her balance went away and her hyperventilation became uncontrollable.  We couldn’t find anything.  But, my optimism forces me to believe there’s always a solution. So we turned to #TeamMagnolia She hasn’t been able to go to school (more on this[…]