Last Day of Pre-K

With Betsy Devos’ hearing making national headlines this week, I thought it’d be helpful to share why a federal focus on special needs education is so important to us.  Maggie “graduated” from Pre-k last summer.  She wasn’t there.  But she graduated.  In fact, she hadn’t been in school since the beginning of April, but she[…]

Take a breath

It’s been awhile since we posted anything here.  After Rett Syndrome Awareness month, we’re emotionally and physically drained.  The event is an intense amount of work, the awareness and videos takes up time too.  On top of that, Maggie’s health is hit or miss – somedays she’s ok, others it’s a real struggle for her[…]

Bubbles thumb

Bubble Burst

Everything that Maggie wants to do is hard for her.  It takes an immense amount of concentration and practice in order for her to accomplish even the most mundane of tasks. She didn’t spontaneously start jumping on a trampoline.  I had to move her legs up and down until she started doing it herself.  She[…]