Home School

There are so many reasons we love the Virtual Academy homeschool program for Mags. Her schedule is flexible, her health is better (colds, flus, viruses, not Rett not yet) it really has been a good program for her. The best part though, is the one day a week she goes to a classroom. She loves Read more about Home School[…]

Magic, Unicorns and Cupcakes

In our life, everything isn’t magic, unicorns and cupcakes. We just do our best to make sure our kids are enjoying themselves and hope the rest will come from there. Maggie turned 8 this past weekend and that brought a lot of excitement and a lot of nerves. When you have a non verbal kid, Read more about Magic, Unicorns and Cupcakes[…]

Let’s talk yoga

Why we do yoga… Yoga has been a part of my life for awhile. I’ve taken yoga classes off and on for the past twenty years. I’ve always loved it as a workout. When Magnolia was 2 years old, I wanted her to take yoga classes, so we would be the cute mommy and daughter Read more about Let’s talk yoga[…]

Where we are now…

There are a lot of ways we can measure our journey with Rett Syndrome. We can measure by the way we have grown and adapted, by what we have done to fundraise or raise awareness. The reality is the most noticeable measure is how Rett Syndrome has progressed. At times it seemed slow and manageable, Read more about Where we are now…[…]

What being 2 1/2 years old means to us… two realities

I can’t tell you how many times I’ve been asked, “Do you see how well Gray is doing?” “Isn’t it exciting how well he is doing?” “Have you noticed how well he is doing?” I think these are all questions of good intentions but inside it makes me internally roll my eyes. LOL. Yeah, I’ve Read more about What being 2 1/2 years old means to us… two realities[…]

Starting 2nd grade

It’s finally here. I can’t believe Magnolia is starting 2nd grade. She loves music, mostly #taylorswift and the #lumineers . She loves #adventuresports#familyadventures and watching #fancynancy she loves #harrypotter She will choose to try and #rockclimb over going #shopping . That is who she is. She wants to be a writer. For the first day of Read more about Starting 2nd grade[…]

Scoliosis, kyphosis and other symptoms causing symptoms?

And now introducing Scoliosis and Kyphosis. Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown. Kyphosis is the excessive outward curvature of the spine, Read more about Scoliosis, kyphosis and other symptoms causing symptoms?[…]

Sk8tr girl Surfer girl

I have a skater girl, surfer girl, extreme sport loving girl. I could not love her more. She may not have all of the abilities, but she has the heart.  Last year, when she asked for a skateboard on her Tobii eyegaze tech computer. I thought she had made a mistake. Hello? Presume competence mom! Read more about Sk8tr girl Surfer girl[…]