October is Rett Awareness Month

We found out October was Rett Awareness month when we first were diagnosed and we’ve been talking about it for months.  What are we going to do?  How will we contribute to Rett Awareness Month?

I had grandiose plans, but am glad I’m more or less just a participant in a number of events.  Awareness doesn’t end at the end of October, but it can begin today if you’re looking for ways to help.  Maybe you’ll change your Facebook profile picture to a purple icon or a Rett logo.  Maybe you’ll participate in a stroll-a-thon, or a Rett golf tournament.  Maybe you’ll just hug your little ones a little tighter this month.  Maybe you’ll find a way to donate if you haven’t.  Or maybe you’ll consider tweeting the list below, provided courtesy of Girl Power 2 Cure for the next 31 days:

However you choose to get involved during Rett Syndrome Awareness week is likely more than you’ve been involved in the past – so we’re already spreading awareness.  You’re already helping – there are already more people involved this year, then there were last year…as in you guys.  Just by being a part of our journey, the word is spreading.  Hopefully soon, when it’s cured, we can all stop talking about.

31 Tweets – October is #RettSyndrome Awareness Month – share this flower to help


A little girl is diagnosed with #RettSyndrome every 90 minutes. gp2c.org

Can’t speak. Can’t walk. Can’t use hands. But you know everything going on around you. It’s #RettSyndrome. gp2c.org

It’s #RettSyndrome awareness month. Girls living trapped unable to speak or use their hands. Hear their stories. girls.gp2c.org

October is not just for #breastcancer awareness. Women are suffering debilitated their whole lives with #RettSyndrome.

Have you seen these cool Purple Cards? 60,000 more people learned about #RettSyndrome this year. BE NEXT. www.girlpower2cure.org/how-to-help/thepurplecard

Baby girls are born “normal” but begin to lose motor skills between the ages of 1-3 years old. It’s #RettSyndrome.

#RettSyndrome is caused by a single gene mutation that leads to underproduction of an important brain protein.

#RettSyndrome is the leading genetic cause of severe impairment in girls- most cannot speak, walk or use their hands. gp2c.org


Despite physical disabilities, girls with #RettSyndrome are functioning mentally at a much higher level than previously thought.

What is as prevalent as Cystic Fibrosis, ALS and Huntington’s but you have not heard of it? #RettSyndrome. It’s a girl thing.

#RettSyndrome has been reversed in the lab and could be first curable neurological disorder. gp2c.org

Why retweet this @GirlPower2Cure flower? It is always in bloom with hope & positive energy. Join me in fighting #RettSyndrome.

Need a challenge? Try one day in my shoes. #rettsyndrome girls.gp2c.org

Friendship isn’t about who you’ve known the longest. It’s who walked into your life, said, “I’m here for you” and proved it. #girlpower2cure

Expectations.  Have them.  Rett Girls can do amazing things.  #rettsyndrome #girlpower2cure #physicaltherapy   

Not all superheroes wear capes!  #girlpower2cure #rettsyndrome

Believe in the power of believing in yourself! #rettsyndrome #girlpower2cure

I think I can, I think I can, I think I can….I know I can  #rettsyndrome #girlpower2cure

Look into their eyes and hear what they are not saying; because of #rettsyndrome their eyes speak louder than their voices ever will.

In honor of #rettsyndrome awareness month, I am rockin’ the @GP2C flower and you can too! https://secure.girlpower2cure.org/np/clients/gp2c/giftstore.jsp

1:10,000 doesn’t seem like many but if it’s YOUR child, it’s too many” #rettsyndrome

There’s real hope for a cure. #rettsyndrome #gp2c gp2c.org

I know a girl that puts the “rett” in pRETTy. Actually I know lots of them, let me introduce you:  http://girls.girlpower2cure.org/

Rett Girls might not fly or leap buildings with a single bound…but they sure are SUPER HEROES to me! #rettsyndrome gp2c.org

What can girls with #RettSyndrome do? Amazing things! WATCH: http://www.youtube.com/rettwecan.

Love this video! Makes me want to put on my dancing shoes and raise awareness for #RettSyndrome. http://www.youtube.com/watch?v=0KcK-Y7hs-4#t=19

I’ve met some amazing girls with #RettSyndrome.  I invite you to take a moment to meet some of them. http://girls.girlpower2cure.org/

I’ve covered a lot of miles this year but so has @GirlPower2Cure. Join me in their fight against #RettSyndrome. gp2c.org

How can you help a girl with #RettSyndrome? Give them a voice and get involved! http://www.girlpower2cure.org/how-to-help/volunteer.aspx

Closer than ever to a cure. Hundreds of thousands girls & women can be saved. Join our fight against #rettsyndrome. gp2c.org

 

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