Conversation Piece

More positive developments: So last night I had a conversation with Maggie. A full, actual, amazing conversation. The first one I may have ever had. It started at dinner and went like this: AJ: Are you enjoying your fried rice? Yes? Or No? Maggie: Ess AJ: Do You want more beef? Yes? Or No? Maggie Read more about Conversation Piece[…]

EEG results

So the results are in. She is not currently experiencing seizures, but she did show some “disruptions”. All that means is that, as expected, her EEG was abnormal and she is at risk for seizures. This doesn’t really change anything from what we were told we were going to hear, it just changes from what Read more about EEG results[…]

Baby’s first EEG

A whole lot of screaming getting connected to the machine, but she ended up exhausting herself so she fell asleep as they had hoped.  The EEG gave the doctors no immediate cause for concern but we won’t know the full results until tomorrow or even later, so anxiety will continue until then.

More testing. More problems.

I think Jenny and I have both been reticent to admit the nerves we’re experiencing. Maggie’s EEG which was scheduled months ago has finally arrived. We go in on Monday. While we were told it is very likely to be abnormal, as all girls with Rett have abnormal brain scans, we’re both hopeful, maybe Maggie Read more about More testing. More problems.[…]