#TakeThatRett

I see #takethatrett as a rallying cry every now and again.  When someone’s daughter takes a few steps, when they say a few words, when they climb a few stairs.  It’s wonderful to see girls pushing through the hardship that Rett has dealt them.  And considering how Mggie’s been doing lately, slowly getting back to[…]

Symptoms of Rett Syndrome | Share for Awareness

  Rett is a progressive disorder – it will get worse and worse until there is a cure.  In other words,  we are never out of the woods.  Every girl’s Rett syndrome is different. These were Maggie’s Rett symptoms last year. Maggie has lost her speech. Maggie’s arms & hands have Parkinson’s like tremors. Maggie hasn’t[…]