My heart broke, but not for Magnolia

Last week I was speaking with a mom with an older daughter with Rett Syndrome. She was watching Magnolia, turned to me and said.”I hope they find a cure or treatment for her. I’d really hate to see that spark go away.” It wasn’t cruel, it was honest. She has been fundraising and hoping for Read more about My heart broke, but not for Magnolia[…]

Celebrity Campaign for Rett Syndrome!!!! #reverserett

[embedyt] https://www.youtube.com/watch?v=6QRk1fgEuRU[/embedyt] Today, a celebrity campaign launches to invite the world to help Reverse Rett. A long list of stars including Sofia Vergara, Matt Lauer, Sarah Silverman, Casey Wilson, Paul Scheer, Billy Eichner, Kristen Schaal, June Diane Raphael and Nick Offerman participated in a PSA video and many more will be part of a social Read more about Celebrity Campaign for Rett Syndrome!!!! #reverserett[…]

It’s not if, its when…

The News We’ve Been Waiting for: “Gene Therapy Program for Rett Syndrome will be advanced by biotech company.” Last week RSRT sent out an email announcing they will be going to a Gene therapy trial for Rett. Reading those words took my breath away. I froze for a moment. My hands were shaking. Since Maggie was diagnosed, I Read more about It’s not if, its when…[…]

Hope for Hannah & Gaby – REVERSE RETT LA

Last year when I reflected on the amount of money we raised collectively, I was proud to have been a part of Maggie’s solution, her hope.  This event, which takes place in LA on October 29th this year, is a big part of that hope for me, having raised over $700,000 for the Rett Syndrome Read more about Hope for Hannah & Gaby – REVERSE RETT LA[…]