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The Scoliosis Scare

When we were first told about Rett Syndrome the doctor suggested we start immediately on Speech Therapy, Occupational Therapy, Physical Therapy and Hippotherapy.  While the first three were familiar, Hippotherapy was not. “It’s horseback therapy,” we were told.  “For scoliosis,” we were told.  “But she doesn’t have scoliosis,” we reminded the doctor.  “Not yet,” said[…]

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Symptoms of Rett Syndrome | Share for Awareness

  Rett is a progressive disorder – it will get worse and worse until there is a cure.  In other words,  we are never out of the woods.  Every girl’s Rett syndrome is different. These were Maggie’s Rett symptoms last year. Maggie has lost her speech. Maggie’s arms & hands have Parkinson’s like tremors. Maggie hasn’t[…]