Traveling and kindness

We love to travel. It has been immensely harder for us the past five years. Since flying became so hard,the past couple of years we have really tried to incorporate more family adventures that involved driving. We have had some really fun experiences from San Diego to Mammoth mountain and I will always love road Read more about Traveling and kindness[…]

Sk8tr girl Surfer girl

I have a skater girl, surfer girl, extreme sport loving girl. I could not love her more. She may not have all of the abilities, but she has the heart.  Last year, when she asked for a skateboard on her Tobii eyegaze tech computer. I thought she had made a mistake. Hello? Presume competence mom! Read more about Sk8tr girl Surfer girl[…]

Chaotic and fun travel Part 2 TEXAS

The stars at night are big and bright….(insert 3 claps) deep in the heart of Texas. Since Magnolia was 2 years old, we haven’t gone to Texas in the summer. First it was too hard to travel because of sensory overload, then her body couldn’t regulate heat, then we had Gray and then she started Read more about Chaotic and fun travel Part 2 TEXAS[…]

Chaotic and fun summer travel

A recipe for a crazy but fun summer vacation. Ingredients One crazy independent toddler One amazing and strong kid with Rett, One busy, multitasking and exhausted dad One overwhelmed but happy mom Directions Knead all ingredients together.  Add in a dollop of seizures, a dash of minor accidents to taste.  Layer in flights to two Read more about Chaotic and fun summer travel[…]

In the holiday spirit

For the past four years, the holiday season has been one that we have dreaded.  What should be a joyous and uplifting time of year, is filled with pain and sadness. AJ and I push through each season and take a deep breathe when we reach NewYear’s. There are so many reasons this time of Read more about In the holiday spirit[…]