The First Annual Gaga For a Cure

Guest blog – submitted by my brother Steve Tesler with help from Maggie’s cousins, Leo and Zeke Tesler.  So grateful to have a village of people who go the extra mile.


 

Every December for the past couple of years, my kids break out their piggy banks and apportion a certain percentage of their accumulated allowance to charity.  Their charity of choice has been the Rett Foundation as the cause is near and dear to their heart.

This year, they wanted to do more for their cousin, Maggie!  We brainstormed ideas for raising more money which included bake sales, walk a thons, and the like.  We settled on a great idea!

One of Zeke’s friend’s mom owns The GaGa Center in NYC.  We decided to invite all of their friends and classmates to an evening of fun where we could all be GaGa for a Cure!

The kids wrote up a little essay and we put it on a flyer which they handed out to their friends and classmates with an invitation to join in the fun and with an appeal to donate to our cause:

From Leo:

197-7405800-F Animators Palate-13361_GPRWe are GaGa for a Cure!

Will you be too?

Hi!! I have a five year old cousin named Maggie (that’s her on the top right). Maggie is an awesome cousin. Sadly, she was born with RETT syndrome. RETT syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls. Maggie is unable to talk because of RETT syndrome. Instead, she has to communicate through a computer program. Maggie also doesn’t have full control of her movements, so she also has to wear weights on her arms to help control her body.

Recently, our family went on a vacation on a Disney Cruise, which would be like paradise for most five­ year olds. Sadly, the noise was too much for her sensitive ears, and she wasn’t able to fully enjoy the vacation. But, she is still my animated, energetic, full of life cousin. And that is why I want to fight to find a cure to RETT syndrome. Will you help?

There is no cure for Rett yet, but we are throwing a fundraiser to help us raise money to find one.

Please, donate and help us find a cure today!

 

From Zeke

197-7405800-F Animators Palate-13361_GPRWe are GaGa for a Cure!

Will you be too?

I have a cousin named Magnolia(Maggie for short). She’s the one on the top right. She has a sickness called Rett Syndrome. Rett is a sickness that can effect girls that are 18 months old, like it did to Maggie. She was walking and starting to talk, when she suddenly forgot everything!

A little while ago, we(my family)went on a Disney Cruise. I remember seeing her use her talker(a computer program that lets everyone know what she’s thinking)and wishing I could talk to her for real. A special moment I spent with her was when we were sitting on a couch and just bouncing around. It was special because it felt like I was communicating with her!

There is no cure for Rett yet, but we are throwing a fundraiser to help us raise money to find one.

Please, donate and help us find a cure today!

On Friday, February 26, 2016, we had almost 50 kids converge on The GaGa Center.  While the kids played, we streamed a series of videos of Maggie on the big screen TV’s.  The kids had a blast and even a number of the parents got into the pit to play!
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Thanks to the thoughtfulness of my kids and the generosity of their friends and classmates, we were able to raise about $3,000…at the FIRST annual GaGa for a Cure event.


Here’s to many more guys.  Thanks again,

AJ, Jenny, Maggie and Grayden

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