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Thanks so much to the Huffington Post for sharing our story.

http://www.huffingtonpost.com/entry/dad-fights-for-cure-for-his-daughters-disorder-in-emotional-video_us_573b5ac5e4b0646cbeeb08cc?

Maggie and I made a video to thank Mark Zuckerberg for responding.  We will try to keep dialogue open with the Chan Zuckerberg Institute, but now we will also have to find new billionaires to attract to the cause.

 

 

 

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