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I’ve always been a fixer. I’m not handy. But I’m a creative problem solver. That’s really the only thing I’ve ever been really good at. This thing that our little one is dealing with is the world’s worst problem. At least it’s my world’s worst problem. It’s the type of thing that may or may not have a fix and that makes it harder for me to wrap my brain around. If there is a fix, I’m confident we will find it for her. The problem is there may not be.
Fortunately, we have great friends who are keeping us confident. We just started telling our friends (see the full email here: http://roadfromrett.wordpress.com/2014/01/24/great-friends) and the response has been overwhelming.
We’ve got promises of donations, offers to phone doctors to get us into trials and even one person offering to call some people in DC to try to move some money into Rett research. It’s the support and confidence our friends have in us that is going to get us through this. Our daughter’s strength is our reminder to keep fighting.
rettsyndrome.com/magnoliashope
