I posted this picture a few weeks ago on Facebook – what felt like a lazy Sunday. This was at 9am. She fell asleep right after this for about two and a half hours.
Somewhere in the middle of that nap I realized what it really was. Her head had fallen forward in her stroller and she was non-responsive. When she came around, she was so tired, that all she wanted to do was sleep. I took her to this hammock and she passed out.
We had hoped we’d be able to avoid this symptom of Rett. We were hoping if they haven’t started already, hopefully they won’t start until puberty, if at all. But, alas, Maggie had, what we believe to be her first seizure. We can’t be 100% sure because there was no EEG during it, but from everything I had been reading, that’s exactly what it was.
It wasn’t as scary as we thought it was going to be. I thought it would be intensely emotional, too. But it wasn’t. I thought I would freak out and not know what to do.
Instead, I just went about the day as if nothing had happened. It was a calm seizure and the result was a calm Maggie as well. I mean, sure, I’m sad for her. I’m sad that she has to deal with one more shitty thing. But it wasn’t scary. She didn’t shake or scream or cry.
Most surprising? Neither did I.