
When Magnolia was 2. doctors would tell me, “It’s just a phase.” No matter what I would bring up to them. Of course with her, it wasn’t just a phase, it was Rett Syndrome. Actually for her it was a Continue Reading
They thought they would teach their daughter about the world Instead they have to teach the world about their daughter
When Magnolia was 2. doctors would tell me, “It’s just a phase.” No matter what I would bring up to them. Of course with her, it wasn’t just a phase, it was Rett Syndrome. Actually for her it was a Continue Reading
The past couple of weeks have brought some fairly promising news in the Rett Syndrome community. I’ll share it here with links so you can become an amateur geneticist too. 1) Trofenitide – one of the drugs currently in trials Continue Reading