
The past couple of weeks have brought some fairly promising news in the Rett Syndrome community. I’ll share it here with links so you can become an amateur geneticist too. 1) Trofenitide – one of the drugs currently in trials Continue Reading
They thought they would teach their daughter about the world Instead they have to teach the world about their daughter
The past couple of weeks have brought some fairly promising news in the Rett Syndrome community. I’ll share it here with links so you can become an amateur geneticist too. 1) Trofenitide – one of the drugs currently in trials Continue Reading
We spent father’s day with my family on the East Coast. We’ve written about it before – how much she enjoys her cousins; and this trip was no different. I think there’s a special bond with family that she understands Continue Reading