We did our first Rett event today.  It was supposed to be a 5k at a park but due to rain it ended up being a stroll around a mall. 

It was nice meeting some of the other families, but Maggie was the only girl who could actually walk around the mall.  All the other girls were too disabled to do it.  Maggie was also the youngest participant which got all of us wondering if the progressive nature of this syndrome will someday strip her ability to walk.

It made me anxious.  But everyone’s telling us if we can keep her walking she will stay walking.  So that’s what we are holding on to.

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