On October 13th, the Rett Syndrome Research Trust’s largest annual fundraiser will take place in Los Angeles. Jenny and I are co-chairing this year in addition to chairing the auction. We have set a goal of raising $1MM at this event this year because the urgency is real. Maggie is getting older, and Rett Syndrome continues to progress. Meanwhile, a cure is not just possible, but probable at this point. With proper funding that cure can come sooner rather than later and Maggie can enjoy being a kid, free of the struggles of Rett Syndrome.
Everyone is welcome to attend this event. If you can’t attend, donations are always welcome and every dollar really does matter. If you can’t do that, but would like to donate something to the auction – we would welcome any support you can give.
This event and others like it around the country have allowed RSRT to fund things like this:
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Even if you don’t fully understand the science, it’s hard not to understand the promise treatments like this hold.
Thank you for being a part of this. We are going to cure this together.
Last year when I reflected on the amount of money we raised collectively, I was proud to have been a part of Maggie’s solution, her hope. This event, which takes place in LA on October 29th this year, is a big part of that hope for me, having raised over $700,000 for the Rett Syndrome Research Trust last year alone, and moved the science needle, almost by itself, in the right direction.
I chaired the auction, sourcing and organizing silent auction items from around the country, though I had little idea what I was doing.
Planning for this year’s event has begun and with the event less than two months away, I’ve started working on it again, emailing friends and loved ones, asking for anything that might fetch a penny at an auction. If you know someone who works at a business that may be interested in sponsoring, an artist who may be interested in donating, someone with a vacation home or a hotellier, or a somelier, anyone who may have something they’d be willing to pass along for this silent auction, please share my info with them or theirs with me. We raised over $30,000 from the auction last year, but I aim to double that.
And, if you’re in LA – or aim to be during this time – you can attend – I’d love to see you there.
At least this time, I’m going to think I know what I’m doing.