I know it’s going to seem like I’m trying to catch lightning in a bottle again. And, I am. And yes, we’re aiming high, here. But, anything worth having is worth asking for. For Maggie, everything is worth fighting for. Continue Reading
An open letter to Mark Zuckerberg and the Chan Zuckerberg Initiative
Dear Mark and Priscilla, It feels odd to be writing to you in this way. Then again, I can’t imagine a better forum to connect with you then the one you dreamed up in your room when you were in Continue Reading
Allergies
Rett is an ever changing mystery – and it’s one we’re constantly trying to solve. Any little thing could be a clue to helping her with some of her symptoms. We obsess over it – just trying to do everything Continue Reading
The Letter S
For the longest time the letter s was important. It was how she said yes with a long extended “s”. It was how she hissed like a snake. It was how she responded to Brown Bear Brown Bear what do Continue Reading
