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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Reliving

Trying to disassociate from our own lives in order to craft a story as a filmmaker was difficult. Explaining how it feels to get a Rett Syndrome diagnosis, explain what Rett Syndrome is and the enormity of living with it, that was hard. Reliving life with Magnolia, I'll cherish every moment of it. Through the month of December the documentary is available to rent at www.magnoliashopedoc.com.

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Watch Magnolia’s Hope for #GivingTuesday

As originally seen on Today.com - The film is available today at https://watch.showandtell.film/watch/magnoliashope Rett Syndrome: Don’t Google It. “Your daughter, Magnolia has Rett Syndrome.” The developmental pediatrician leaned in apologetically

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This is 10

Today is Magnolia's birthday. 10 years old! She is in so many ways everything I would hope my 10 year old would become. She is wise, and smart, and defiant,

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How do Rett Symptoms really impact our daughter?

I recognize that without living through the myriad of symptoms that Rett causes, it's hard to really picture what these symptoms are like.  Not being able to use your hands, for

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Spinning out of control

A very common statement said to me is, "I don't know how you do it". I usually don't know how to respond other than smile and change the subject. Truth

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We are not alone….

November 4, 2019 Jenny TeslerLeave a comment

We have a special treat. Sara Polon reached out to us a few years ago and has been consistently supporting us by raising awareness for Rett Syndrome, fundraising through her business, Soupergirl; and sending us soup to lift our spirits Continue Reading

Tagged inspires,Magnolia,meeveryday,met,polon,sara
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Off on a solo adventure

October 14, 2019June 26, 2020 ajtesler1 Comment

I have mixed emotions when I travel away from Jenny, Maggie and Gray.  On one hand, things are hard at home and it’s a struggle to stay on top of everything when both of us are home, making me feeling Continue Reading

Tagged adventure,solo
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Let’s play ball!

June 29, 2019July 2, 2019 Jenny TeslerLeave a comment

Summer has begun for everyone, at least in our hemisphere. On social media I have seen families sending their kids off to camps, going on family trips and also just swimming by the pool.  It’s been a tough few months Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,begins,hope,rare disease,reverserett,summer
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Should we go to the ER?

May 30, 2019May 30, 2019 Jenny TeslerLeave a comment

I’m not sad. I’m angry with Rett Syndrome.  We are in a very strange and confusing place as parents – not just parents of a beautiful child with special needs; not just parents of a brave girl with Rett Syndrome; Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,coping,cure,epilepsy,feeding tube,special needs
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The Long Weekend

April 25, 2019April 25, 2019 ajtesler9 Comments

Maggie is a full time job.  Technically she’s a full time job for 3 people.  And even then, it’s a lot.  This weekend, Jenny took Grayden out of town for his spring break.  I can only assume they’ve been busy Continue Reading

Tagged long,weekend
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The Aruba nightmare

April 5, 2019April 5, 2019 Jenny TeslerLeave a comment

Before Rett Syndrome, before hospital visits and a scary diagnosis. We were just a tiny family dealing with ordinary issues. I thought I would do a flashback post to when Magnolia was one year old and we went to Aruba. Continue Reading

Tagged #rettsyndrome,adventure,aruba,CDC,family,familylife,nightmare,Norovirus,vacation
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Beautifully brutal or brutally beautiful…

March 12, 2019 Jenny TeslerLeave a comment

Sometimes the smallest of moments show us the beauty of life. Those same moments can also be heart wrenching. I had one of those moments this past weekend. It was simple, it was nothing, it was beautiful, it was brutal. Continue Reading

Tagged #rettsyndrome,beautifully,brutal,complex,curerett,iamable,milestones,needs,raredisease,reverserett,special
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The drastic swing of a pendulum

February 8, 2019 Jenny Tesler1 Comment

Newton’s 3rd law states…”For every action there is an equal and opposite reaction”. I’m starting to think that pertains to our life right now. Whenever our life swings in one direction, its not very long that it seems to swing Continue Reading

Tagged #rettsyndrome,breathing issues,drastic,iamable,pendulum,specialneeds,swing
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Waves of crashing emotions

January 31, 2019 Jenny TeslerLeave a comment

If we get to sleep, I usually wake up positive. This has been a big shift for me over the past five years. I didn’t use to wake up positive. Honestly, I was living in a fog. The fog of Continue Reading

Tagged #rettsyndrome,breathingdifficulties,cure,dinghy,disability,dystonia,hope,seizures,specialneeds,treatment
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Traveling and kindness

January 7, 2019January 7, 2019 Jenny Tesler3 Comments

We love to travel. It has been immensely harder for us the past five years. Since flying became so hard,the past couple of years we have really tried to incorporate more family adventures that involved driving. We have had some Continue Reading

Tagged #rettsyndrome,adventure,Choosekind,familyadventure,reverserett,specialneedsparenting,travel

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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Magnolia’s Hope Documentary (Official Teaser)

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