Skip to content
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope
Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

Primary Menu
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope

Am I missing something?

This past week I kept thinking, "I’m missing something. Is there something else we could be doing for her breathing? Or for her hands? Or for anything else?" To tell

Browse More

The gift of conversation

A hard 5 minute conversation for you, could be a gift of a lifetime of actual conversations for my child. As we start the new school year, at a new

Browse More

Featured in Parents.com

Every year one of my resolutions is to write more. I make a list of favorite online magazines, tell myself I'm going to submit an essay or article to them.

Browse More

Awareness is the goal

If you have been following us for awhile, you know that we focus on three main goals. Awareness for Rett Syndrome, fundraising for Rett Syndrome organizations, and living life as

Browse More

Moving Forward

Work in the entertainment industry had all but completely halted and the particular segment of the business I was in was going to be slow to return. Zoom school was not working for either kid. In person school was going to feel too risky. So, with no education plans, no employment plans, and no social plans, we did the only thing that felt safe at the time. We bought an RV.

Browse More
Uncategorized

How do Rett Symptoms really impact our daughter?

October 23, 2020October 23, 2020 ajteslerLeave a comment

I recognize that without living through the myriad of symptoms that Rett causes, it’s hard to really picture what these symptoms are like.  Not being able to use your hands, for example, does not seem as horribly disabling as it is. Continue Reading

Tagged daughter,impact,rett,symptoms
Uncategorized

Spinning out of control

October 15, 2020October 15, 2020 Jenny Tesler3 Comments

A very common statement said to me is, “I don’t know how you do it”. I usually don’t know how to respond other than smile and change the subject. Truth is, there are days that life is spinning out of Continue Reading

Tagged awareness,Rett syndrome,seizures,symptoms,vertigo
Uncategorized

Diagnosis: uncertainty

October 8, 2020October 8, 2020 Jenny Tesler1 Comment

We have all known life is uncertain, but 2020 has really handed us uncertainty on a silver platter. If anything Covid has given the world a glimpse into our lives. The entire world is contemplating medical uncertainty, a range of Continue Reading

Tagged awareness,october,raredisease,Rett syndrome,rettsyndromeawareness,seizures,specialneeds,specialneedsfamily,specialneedsparenting
Rett Awareness

What would you ask for?

September 12, 2020September 12, 2020 Jenny TeslerLeave a comment

We have been told numerous times, “We are so close to a cure.We are so close to treatment for Rett.” We have had so much hope for a cure, but even a treatment, something to abate one of her symptoms Continue Reading

Tagged disability,hand function,hope,rett awareness,Rett syndrome,seizures,special needs,symptoms
Uncategorized

Positive moments

July 10, 2020October 15, 2020 Jenny Tesler1 Comment

Everyday I try to focus on the positive. I thought I would share some of my positivity with you. Here’s 10 moments during this pandemic that have made me realize, life isn’t so bad. (scroll down for blog) Top 10 Continue Reading

Tagged #rettsyndrome,coping,Coronavirus,Covid19,family,humor,mentalhealth,momlife,pandemic
Uncategorized

The Never Normal New Normal

June 26, 2020June 26, 2020 ajtesler2 Comments

“The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.” – William Arthur Ward We’re excited for a time when we can all get through this and we can get back to normal.  Continue Reading

Tagged disability,normal
Uncategorized

Surviving Corona

April 17, 2020June 25, 2020 Jenny TeslerLeave a comment

Life was finally moving in a smooth direction. In late February, thanks to new dosing of medications, her seizures were back to being under control, her breathing issues went from a constant struggle to a regular but not constant problem Continue Reading

Tagged #rettsyndrome,Coronavirus,disney,girlpower2cure,seizures
Uncategorized

We are not alone….

November 4, 2019 Jenny TeslerLeave a comment

We have a special treat. Sara Polon reached out to us a few years ago and has been consistently supporting us by raising awareness for Rett Syndrome, fundraising through her business, Soupergirl; and sending us soup to lift our spirits Continue Reading

Tagged inspires,Magnolia,meeveryday,met,polon,sara
Uncategorized

Off on a solo adventure

October 14, 2019June 26, 2020 ajtesler1 Comment

I have mixed emotions when I travel away from Jenny, Maggie and Gray.  On one hand, things are hard at home and it’s a struggle to stay on top of everything when both of us are home, making me feeling Continue Reading

Tagged adventure,solo
Uncategorized

Let’s play ball!

June 29, 2019July 2, 2019 Jenny TeslerLeave a comment

Summer has begun for everyone, at least in our hemisphere. On social media I have seen families sending their kids off to camps, going on family trips and also just swimming by the pool.  It’s been a tough few months Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,begins,hope,rare disease,reverserett,summer

Posts navigation

Older posts
Newer posts

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

Subscribe for updates

(Un)Subscribe to Posts

Magnolia’s Hope Documentary (Official Teaser)

https://www.youtube.com/watch?v=Ud_OVaxCSE4
Close

Magnolia’s Hope The Documentary

Copyright 2020 All rights reserved Theme: Blog Expert by Themeinwp