A hard 5 minute conversation for you, could be a gift of a lifetime of actual conversations for my child. As we start the new school year, at a new school, with new friends that is all I can think Continue Reading
My new piece on Maggie’s style
I wrote another article for Rett Girl magazine and I hope you’ll give it a read. It’s been hard to try to figure out Maggie’s own personal style, since both AJ and I have our own ideas about what style Continue Reading
How to talk to a non-verbal kid
Talking to a non-verbal kid is a complicated endeavor. They can’t talk and so we don’t listen. But what we’ve learned is that they do talk. She doesn’t use words. She doesn’t use hand gestures (consistently) but she does talk. Continue Reading
Symptoms of Rett Syndrome | Share for Awareness
Rett is a progressive disorder – it will get worse and worse until there is a cure. In other words, we are never out of the woods. Every girl’s Rett syndrome is different. These were Maggie’s Rett symptoms last year. Continue Reading
