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They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: cure

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Should we go to the ER?

May 30, 2019May 30, 2019 Jenny TeslerLeave a comment

I’m not sad. I’m angry with Rett Syndrome.  We are in a very strange and confusing place as parents – not just parents of a beautiful child with special needs; not just parents of a brave girl with Rett Syndrome; Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,coping,cure,epilepsy,feeding tube,special needs
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Waves of crashing emotions

January 31, 2019 Jenny TeslerLeave a comment

If we get to sleep, I usually wake up positive. This has been a big shift for me over the past five years. I didn’t use to wake up positive. Honestly, I was living in a fog. The fog of Continue Reading

Tagged #rettsyndrome,breathingdifficulties,cure,dinghy,disability,dystonia,hope,seizures,specialneeds,treatment
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Celebrity Campaign for Rett Syndrome!!!! #reverserett

October 25, 2017 Jenny Tesler1 Comment

[embedyt] https://www.youtube.com/watch?v=6QRk1fgEuRU[/embedyt] Today, a celebrity campaign launches to invite the world to help Reverse Rett. A long list of stars including Sofia Vergara, Matt Lauer, Sarah Silverman, Casey Wilson, Paul Scheer, Billy Eichner, Kristen Schaal, June Diane Raphael and Nick Continue Reading

Tagged #magnoliashope,#rettsyndrome,cure,rett,reverse,reverserett
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It’s not if, its when…

June 13, 2017 Jenny Tesler4 Comments

The News We’ve Been Waiting for: “Gene Therapy Program for Rett Syndrome will be advanced by biotech company.” Last week RSRT sent out an email announcing they will be going to a Gene therapy trial for Rett. Reading those words took Continue Reading

Tagged cure,gene,hope,Magnolia,research,rett,reverse,syndrome,therapy,trial,trust
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Goodbye 2016, Hello 2017

January 1, 2017December 31, 2016 Jenny Tesler4 Comments

Everywhere I look, I see people saying 2016 was the worst year. I get it. There is no doubt 2016 was extremely difficult for us. You guys have watched Maggie push through so many obstacles that Rett has thrown at Continue Reading

Tagged 2016,2017,cure,happy,new,rett,syndrome,year
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Dealing with illness with grace

April 21, 2016 ajtesler1 Comment

I’ve blogged about Maggie being sick. A lot. It’s the worst. Having a sick kid is always hard, but having a sick kid who can’t tell you what’s bothering them and can’t control their body to blow their nose, spit Continue Reading

Tagged annual,cure,gaga
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The First Annual Gaga For a Cure

March 17, 2016 ajtesler1 Comment

Guest blog – submitted by my brother Steve Tesler with help from Maggie’s cousins, Leo and Zeke Tesler.  So grateful to have a village of people who go the extra mile.   Every December for the past couple of years, Continue Reading

Tagged annual,cure,gaga
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Rettland Foundation

February 2, 2016 Jenny TeslerLeave a comment

When Maggie was first diagnosed with Rett, AJ and I were adamant that we would only donate money to find a treatment or cure for Rett. Then we found out there were clinical trials that had started but were having Continue Reading

Tagged cure,donate,drug,foundation,rett,rettland,treatment,trial
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13.1

November 25, 2015November 25, 2015 Jenny TeslerLeave a comment

13.1 Miles. I have never aspired to be a runner. Two years ago, I downloaded the couch to 5K app on my phone. I thought, well it’d be nice if I could run a 5K, that’s 3.1 miles. Who knew Continue Reading

Tagged avengers,cure,disney,girlpower,half,marathon,rett,syndrome,two
Rett Awareness

Symptoms of Rett Syndrome | Share for Awareness

October 5, 2015October 5, 2015 Jenny Tesler3 Comments

  Rett is a progressive disorder – it will get worse and worse until there is a cure.  In other words,  we are never out of the woods.  Every girl’s Rett syndrome is different. These were Maggie’s Rett symptoms last year. Continue Reading

Tagged anxiety,apraxia,awareness,cure,nonverbal,october,parkinsons,rett,scoliosis,seizures,symptoms,syndrome,treatment,tremors

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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