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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: trial

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It’s not if, its when…

June 13, 2017 Jenny Tesler4 Comments

The News We’ve Been Waiting for: “Gene Therapy Program for Rett Syndrome will be advanced by biotech company.” Last week RSRT sent out an email announcing they will be going to a Gene therapy trial for Rett. Reading those words took Continue Reading

Tagged cure,gene,hope,Magnolia,research,rett,reverse,syndrome,therapy,trial,trust
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Being a part of history

March 22, 2017March 22, 2017 Jenny Tesler7 Comments

Looking back, it seems so long ago that Maggie was a part of the Trofinitide clinical trial. At 5 years old, my little girl went through 10 weeks of weekly appointments in a different city, to change her life. How Continue Reading

Tagged clinical,history,hope,Magnolia,nnz2566,part,san diego,trial,trofinitide
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Rettland Foundation

February 2, 2016 Jenny TeslerLeave a comment

When Maggie was first diagnosed with Rett, AJ and I were adamant that we would only donate money to find a treatment or cure for Rett. Then we found out there were clinical trials that had started but were having Continue Reading

Tagged cure,donate,drug,foundation,rett,rettland,treatment,trial
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The waiting game

February 16, 2015 Jenny Tesler1 Comment

For the past 45 days, we have been waiting to hear if the FDA was going to approve NNZ-2566 with Orphan Drug Status.  Everyday I (Jenny) have thought about it anxiously, even on days I tried not to think about Continue Reading

Tagged cure,drug,neuren,nnz2566,rett,syndrome,treatment,trial,trofinetide
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NNZ trial press report released

November 21, 2014November 20, 2014 Jenny Tesler4 Comments

This past week has been a roller coaster of emotions. Last Tuesday November 12,2014, two days after Maggie’s 4th birthday. Neuren Pharmaceuticals released the information regarding the NNZ trial for Rett Syndrome. This is a big deal. There are several Continue Reading

Tagged efficacy,nnz,released,report,trial
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Boston – IGF-1 Clinical trial

October 3, 2014October 1, 2014 ajtesler6 Comments

A clinical trial for Rett Syndrome called us over the weekend to let us know that a spot had opened up for Maggie.  She’d be the 30th girl of 30 girls in the trial.  Our emotions are all over the place. Continue Reading

Tagged boston,clinical,igf1,trial

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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