Your ads will be inserted here byEasy Plugin for AdSense.Please go to the plugin admin page toPaste your ad code OR Suppress this ad slot. The stars at night are big and bright….(insert 3 claps) deep in the heart of Continue Reading
Seizures, part 2….
Your ads will be inserted here byEasy Plugin for AdSense.Please go to the plugin admin page toPaste your ad code OR Suppress this ad slot. Today we are 10 days free of seizures (that we know of). After the last Continue Reading
Being a part of history
Looking back, it seems so long ago that Maggie was a part of the Trofinitide clinical trial. At 5 years old, my little girl went through 10 weeks of weekly appointments in a different city, to change her life. How Continue Reading
Through her eyes
I wanted to put a go pro on her and show what it’s like to be Maggie. This was supposed to be a follow up to the communication video from last week. It was supposed to show how engaged she Continue Reading
A two week journey in two parts. Part 2 – The Disney Cruise
Christmas day. 2015. End of Leg 1 of our two week vacation. We all sit around the living room of my in-law’s house, opening presents, sharing the last moments of togetherness before we head out on the next leg Continue Reading
A two week journey in two parts. Part 1.
In Los Angeles, everything shuts down for the final two weeks of the year, as everyone escapes back to their family or goes on vacation. We’re fortunate to be able to do both most years. We typically spend Christmas in Continue Reading
