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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: part

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Chaotic and fun travel Part 2 TEXAS

July 13, 2018July 13, 2018 Jenny Tesler2 Comments

The stars at night are big and bright….(insert 3 claps) deep in the heart of Texas. Since Magnolia was 2 years old, we haven’t gone to Texas in the summer. First it was too hard to travel because of sensory Continue Reading

Tagged chaotic,emergency,fun,Gulfcoast,MorgansWonderland,part,rettsyndrom,sanantonio,SAzoo,seizures,texas,travel
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Seizures, part 2….

April 21, 2017 Jenny TeslerLeave a comment

Today we are 10 days free of seizures (that we know of). After the last hospital visit and 48 hour video EEG, the doctor said they were happy with her meds. AJ and I were both happy, confused, and nervous.  Continue Reading

Tagged CHLA,eeg,epilepsy,part,rett,seizures,syndrome
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Being a part of history

March 22, 2017March 22, 2017 Jenny Tesler7 Comments

Looking back, it seems so long ago that Maggie was a part of the Trofinitide clinical trial. At 5 years old, my little girl went through 10 weeks of weekly appointments in a different city, to change her life. How Continue Reading

Tagged clinical,history,hope,Magnolia,nnz2566,part,san diego,trial,trofinitide
Rett Awareness

Through her eyes

February 18, 2016February 18, 2016 ajteslerLeave a comment

https://youtu.be/PJuUpDefrhY I wanted to put a go pro on her and show what it’s like to be Maggie. This was supposed to be a follow up to the communication video from last week. It was supposed to show how engaged Continue Reading

Tagged journey,part,parts,week
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A two week journey in two parts. Part 2 – The Disney Cruise

January 13, 2016January 13, 2016 ajtesler5 Comments

Christmas day.  2015. End of Leg 1 of our two week vacation.   We all sit around the living room of my in-law’s house, opening presents, sharing the last moments of togetherness before we head out on the next leg Continue Reading

Tagged cruise,disney,journey,part,parts,week
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A two week journey in two parts. Part 1.

January 6, 2016January 11, 2016 ajtesler1 Comment

In Los Angeles, everything shuts down for the final two weeks of the year, as everyone escapes back to their family or goes on vacation.  We’re fortunate to be able to do both most years.  We typically spend Christmas in Continue Reading

Tagged part,parts,rett,syndrome,traveling

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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