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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: epilepsy

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Should we go to the ER?

May 30, 2019May 30, 2019 Jenny TeslerLeave a comment

I’m not sad. I’m angry with Rett Syndrome.  We are in a very strange and confusing place as parents – not just parents of a beautiful child with special needs; not just parents of a brave girl with Rett Syndrome; Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,coping,cure,epilepsy,feeding tube,special needs
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My heart broke, but not for Magnolia

August 3, 2018August 2, 2018 Jenny TeslerLeave a comment

Last week I was speaking with a mom with an older daughter with Rett Syndrome. She was watching Magnolia, turned to me and said.”I hope they find a cure or treatment for her. I’d really hate to see that spark Continue Reading

Tagged #rettsyndrome,broke,disease,epilepsy,gene therapy,heart,hope,Magnolia,rare,rett,reverse,seizures
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Better belly happy mommy

May 25, 2018 Jenny TeslerLeave a comment

If your doctor ever prescribes you Flagyl, know that you are about to imbibe a nasty liquid. Everyday for the past two weeks we had to basically hold a pep rally in order for her to take her belly medication. Continue Reading

Tagged #rettsyndrome,epilepsy,Gastrointestinal,instagram,neurologist,seizures,specialist
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One little pill

May 4, 2018 Jenny Tesler3 Comments

What a difference one little pill has made in our lives. Two weeks ago I lowered Magnolia’s seizure meds. She was taking 3 pills in the AM and 3 pills in the evening of Topirimate aka Topimax. She now takes Continue Reading

Tagged brain,correlation,epilepsy,GI,gut,neurology,Rett syndrome,seizures,topomax
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Seizures, part 2….

April 21, 2017 Jenny TeslerLeave a comment

Today we are 10 days free of seizures (that we know of). After the last hospital visit and 48 hour video EEG, the doctor said they were happy with her meds. AJ and I were both happy, confused, and nervous.  Continue Reading

Tagged CHLA,eeg,epilepsy,part,rett,seizures,syndrome

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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