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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: adventure

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In sickness and in health….preferably health

July 20, 2022 Jenny Tesler9 Comments

I am trying to relax, it isn’t easy. On days that I feel good, I often do too much. Last week when I woke up, I felt great. So I did three loads of laundry, went for a walk, did Continue Reading

Tagged adventure,cancer,caretaker,family,follicular,follicularnonhodgkinslymphoma,lymphoma,marriage,nonhodgkins,raredisease,rettsyndrom
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Off on a solo adventure

October 14, 2019June 26, 2020 ajtesler1 Comment

I have mixed emotions when I travel away from Jenny, Maggie and Gray.  On one hand, things are hard at home and it’s a struggle to stay on top of everything when both of us are home, making me feeling Continue Reading

Tagged adventure,solo
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Let’s play ball!

June 29, 2019July 2, 2019 Jenny TeslerLeave a comment

Summer has begun for everyone, at least in our hemisphere. On social media I have seen families sending their kids off to camps, going on family trips and also just swimming by the pool.  It’s been a tough few months Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,begins,hope,rare disease,reverserett,summer
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Should we go to the ER?

May 30, 2019May 30, 2019 Jenny TeslerLeave a comment

I’m not sad. I’m angry with Rett Syndrome.  We are in a very strange and confusing place as parents – not just parents of a beautiful child with special needs; not just parents of a brave girl with Rett Syndrome; Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,coping,cure,epilepsy,feeding tube,special needs
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The Aruba nightmare

April 5, 2019April 5, 2019 Jenny TeslerLeave a comment

Before Rett Syndrome, before hospital visits and a scary diagnosis. We were just a tiny family dealing with ordinary issues. I thought I would do a flashback post to when Magnolia was one year old and we went to Aruba. Continue Reading

Tagged #rettsyndrome,adventure,aruba,CDC,family,familylife,nightmare,Norovirus,vacation
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Traveling and kindness

January 7, 2019January 7, 2019 Jenny Tesler3 Comments

We love to travel. It has been immensely harder for us the past five years. Since flying became so hard,the past couple of years we have really tried to incorporate more family adventures that involved driving. We have had some Continue Reading

Tagged #rettsyndrome,adventure,Choosekind,familyadventure,reverserett,specialneedsparenting,travel
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Sk8tr girl Surfer girl

August 21, 2018 Jenny Tesler1 Comment

I have a skater girl, surfer girl, extreme sport loving girl. I could not love her more. She may not have all of the abilities, but she has the heart.  Last year, when she asked for a skateboard on her Continue Reading

Tagged #rettsyndrome,adventure,awareness,camp,family,girl,lajollashores,sandiego,sk8tr,sk8trgirl,skatergirl,surf,surfer,surfergirl,travel,vacation
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Chaotic and fun summer travel

July 5, 2018 Jenny Tesler1 Comment

A recipe for a crazy but fun summer vacation. Ingredients One crazy independent toddler One amazing and strong kid with Rett, One busy, multitasking and exhausted dad One overwhelmed but happy mom Directions Knead all ingredients together.  Add in a Continue Reading

Tagged #rettsyndrome,adventure,adventures,chaotic,disability,family,fun,needs,seizures,special,summer,travel
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Memorial Day weekend

May 29, 2018May 29, 2018 Jenny Tesler11 Comments

We had a packed weekend, which I love. Saturday, Magnolia was to have gymnastics in the morning and Gray asked to go climb a mountain. So Mags and I had fun going to gymnastics while AJ took Gray to hike Continue Reading

Tagged adventure,beachlife,day,farm,farmlife,Malibu,memorial,ojai,Rett syndrome
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An Incredible Adventure

February 9, 2018February 8, 2018 Jenny Tesler4 Comments

https://youtu.be/P4Q_8EJQi10 We are committed to giving Maggie typical experiences and a life full of incredible memories.  She deserves it and it’s one thing that keeps our life feeling typical as well. We have been planning to go on a ski Continue Reading

Tagged adventure,mammoth

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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