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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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In sickness and in health….preferably health

July 20, 2022 Jenny Tesler9 Comments

I am trying to relax, it isn’t easy. On days that I feel good, I often do too much. Last week when I woke up, I felt great. So I did three loads of laundry, went for a walk, did Continue Reading

Tagged adventure,cancer,caretaker,family,follicular,follicularnonhodgkinslymphoma,lymphoma,marriage,nonhodgkins,raredisease,rettsyndrom
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The journey of our documentary

February 5, 2021February 5, 2021 Jenny TeslerLeave a comment

In 2019 we released our trailer for our documentary with the intention that 2020 would be the year we would share it. Little did we know how hard that would end up being. We were having a very exciting 2019 Continue Reading

Tagged clinicaltrial,Documentary,family,filmmaking,rettsyndrome
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Positive moments

July 10, 2020October 15, 2020 Jenny Tesler1 Comment

Everyday I try to focus on the positive. I thought I would share some of my positivity with you. Here’s 10 moments during this pandemic that have made me realize, life isn’t so bad. (scroll down for blog) Top 10 Continue Reading

Tagged #rettsyndrome,coping,Coronavirus,Covid19,family,humor,mentalhealth,momlife,pandemic
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The Aruba nightmare

April 5, 2019April 5, 2019 Jenny TeslerLeave a comment

Before Rett Syndrome, before hospital visits and a scary diagnosis. We were just a tiny family dealing with ordinary issues. I thought I would do a flashback post to when Magnolia was one year old and we went to Aruba. Continue Reading

Tagged #rettsyndrome,adventure,aruba,CDC,family,familylife,nightmare,Norovirus,vacation
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Sk8tr girl Surfer girl

August 21, 2018 Jenny Tesler1 Comment

I have a skater girl, surfer girl, extreme sport loving girl. I could not love her more. She may not have all of the abilities, but she has the heart.  Last year, when she asked for a skateboard on her Continue Reading

Tagged #rettsyndrome,adventure,awareness,camp,family,girl,lajollashores,sandiego,sk8tr,sk8trgirl,skatergirl,surf,surfer,surfergirl,travel,vacation
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Chaotic and fun summer travel

July 5, 2018 Jenny Tesler1 Comment

A recipe for a crazy but fun summer vacation. Ingredients One crazy independent toddler One amazing and strong kid with Rett, One busy, multitasking and exhausted dad One overwhelmed but happy mom Directions Knead all ingredients together.  Add in a Continue Reading

Tagged #rettsyndrome,adventure,adventures,chaotic,disability,family,fun,needs,seizures,special,summer,travel
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What a crazy month!

March 2, 2018 Jenny TeslerLeave a comment

October is Rett Syndrome awareness month, but apparently so is February for Team Magnolia’s Hope. Wow, just wow! I am speechless with the amount of support, love, community, awareness and fundraising we just received this past month. It almost seems as Continue Reading

Tagged #magnoliashope,#rettsyndrome,anderson,austin,disney,family,friends,girl,gp2c,halfmarathon,jamie,olympics,power,princess,reverserett,rsrt

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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