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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: trofinitide

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Words we have been waiting for….

March 15, 2023 Jenny TeslerLeave a comment

                           US THEN 2016   , The words we have been waiting for… FDA approves Trofinetide for treatment of RETT SYNDROME! This is big news! This isn’t a Continue Reading

Tagged clinical,clinical trial,daybue,family,rare disease,rettsyndrome,seizures,trofinitide
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Being a part of history

March 22, 2017March 22, 2017 Jenny Tesler7 Comments

Looking back, it seems so long ago that Maggie was a part of the Trofinitide clinical trial. At 5 years old, my little girl went through 10 weeks of weekly appointments in a different city, to change her life. How Continue Reading

Tagged clinical,history,hope,Magnolia,nnz2566,part,san diego,trial,trofinitide

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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