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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: nnz2566

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Being a part of history

March 22, 2017March 22, 2017 Jenny Tesler7 Comments

Looking back, it seems so long ago that Maggie was a part of the Trofinitide clinical trial. At 5 years old, my little girl went through 10 weeks of weekly appointments in a different city, to change her life. How Continue Reading

Tagged clinical,history,hope,Magnolia,nnz2566,part,san diego,trial,trofinitide
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The waiting game

February 16, 2015 Jenny Tesler1 Comment

For the past 45 days, we have been waiting to hear if the FDA was going to approve NNZ-2566 with Orphan Drug Status.  Everyday I (Jenny) have thought about it anxiously, even on days I tried not to think about Continue Reading

Tagged cure,drug,neuren,nnz2566,rett,syndrome,treatment,trial,trofinetide

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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