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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: disease

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Rett Syndrome, Cancer and coffee… a memoir

July 5, 2022 Jenny Tesler17 Comments

It just happened. I woke up, got dressed to go for a run and there it was. A large lump on my neck. I wondered…I had bloodwork done the day before, is this a reaction to that? What is it? Continue Reading

Tagged #rettsyndrome,cancer,caretaker,disease,follicularnonhodgkinslymphoma,healthcare,lymphoma,nonhodgkins
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My heart broke, but not for Magnolia

August 3, 2018August 2, 2018 Jenny TeslerLeave a comment

Last week I was speaking with a mom with an older daughter with Rett Syndrome. She was watching Magnolia, turned to me and said.”I hope they find a cure or treatment for her. I’d really hate to see that spark Continue Reading

Tagged #rettsyndrome,broke,disease,epilepsy,gene therapy,heart,hope,Magnolia,rare,rett,reverse,seizures
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Being her voice

January 19, 2018 ajtesler2 Comments

I read a news story recently that frustrated me to no end.  It reminded me how far we have to go to get to real understanding of patient rights and saddened me for this family.  A girl, living with Rett Continue Reading

Tagged #rettsyndrome,advocate,disease,doctors,rare,rett,voice

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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