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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Category: Rett Awareness

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  • Rett Awareness
Rett Awareness

Gasping

January 10, 2022January 10, 2022 Jenny Tesler2 Comments
Tagged breathing,breathing difficulties,breathing issues,complexdisorder,justbreathe,rettsyndrome
Rett Awareness

What would you ask for?

September 12, 2020September 12, 2020 Jenny TeslerLeave a comment

We have been told numerous times, “We are so close to a cure.We are so close to treatment for Rett.” We have had so much hope for a cure, but even a treatment, something to abate one of her symptoms Continue Reading

Tagged disability,hand function,hope,rett awareness,Rett syndrome,seizures,special needs,symptoms
Rett Awareness

Back to school on April 11

May 2, 2017 Jenny Tesler1 Comment

We have been homeschooling Maggie this year, for various reasons – mostly, because she had a rough year last year.  She was constantly getting sick, which in turn caused more Rett symptoms, and though she has fought so hard to gain Continue Reading

Tagged #magnoliashope,#rettsyndrome,communication,hope,school,special needs
Rett Awareness

Through her eyes

February 18, 2016February 18, 2016 ajteslerLeave a comment

https://youtu.be/PJuUpDefrhY I wanted to put a go pro on her and show what it’s like to be Maggie. This was supposed to be a follow up to the communication video from last week. It was supposed to show how engaged Continue Reading

Tagged journey,part,parts,week
Rett Awareness

Why the #hopeisreal…

December 16, 2015 ajtesler1 Comment

Last week, Jenny and I wrapped up our formal fundraising efforts for this year.  Our friend, Jaime Morgenstern, who runs Gilt City events gives us a booth and donates some money to RSRT.  They also donate a bunch of liquor Continue Reading

Rett Awareness

Cooking with Maggie

December 1, 2015November 30, 2015 ajteslerLeave a comment

We’ve talked a lot about hand over hand exercises on this blog and have assumed that most people reading this go “oh yeah, I know what that means, I do it all the time.”  But I realize I wouldn’t have Continue Reading

Tagged cooking,episode,maggie
Rett Awareness

Symptoms of Rett Syndrome | Share for Awareness

October 5, 2015October 5, 2015 Jenny Tesler3 Comments

  Rett is a progressive disorder – it will get worse and worse until there is a cure.  In other words,  we are never out of the woods.  Every girl’s Rett syndrome is different. These were Maggie’s Rett symptoms last year. Continue Reading

Tagged anxiety,apraxia,awareness,cure,nonverbal,october,parkinsons,rett,scoliosis,seizures,symptoms,syndrome,treatment,tremors

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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