Skip to content
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope
Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

Primary Menu
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope

Tag: communication

  • Home
  • communication
Uncategorized

A seizure rollercoaster ride….

April 25, 2018April 25, 2018 Jenny Tesler3 Comments

I’ve learned a lot of things the past few years dealing with Rett Syndrome. First, every time I write Rett, it gets auto corrected to Rest, which is hilarious. I wish she had Rest Syndrome  A syndrome where everyone is Continue Reading

Tagged #magnoliashope,#rettsyndrome,communication,eyegaze,keppra,neuro,rett,seizure,seizures,sideeffects,symptoms,technology,tobii,topimax,update
Rett Awareness

Back to school on April 11

May 2, 2017 Jenny Tesler1 Comment

We have been homeschooling Maggie this year, for various reasons – mostly, because she had a rough year last year.  She was constantly getting sick, which in turn caused more Rett symptoms, and though she has fought so hard to gain Continue Reading

Tagged #magnoliashope,#rettsyndrome,communication,hope,school,special needs
Uncategorized

How does a regression happen?

April 14, 2016April 14, 2016 ajtesler1 Comment

After witnessing Maggie’s struggles with communication, I’ve become more aware how complex communication really is.  People who knew her when she had access to a few words are still, as are we, confused about how it can be there and Continue Reading

Tagged communication,making,progress
Uncategorized

You Can’t Understand All

January 28, 2016January 27, 2016 ajteslerLeave a comment

We’ve talked a lot about how great the Tobii is and how phenomenal it is to hear her thoughts.  The thing that we don’t really talk about is the limiting nature of it as well.  The amount of words she Continue Reading

Tagged communication,programming
Uncategorized

Memorial Day and Communication

May 26, 2015 ajtesler8 Comments

We’ve been trialling a different eye gaze computer for the last few weeks.  Susan Norwell, one of the respected experts in Rett Syndrome communication, came to visit and gave us a real kick in the pants – in a good way Continue Reading

Tagged communication,day,memorial

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

Subscribe for updates

(Un)Subscribe to Posts

Magnolia’s Hope Documentary (Official Teaser)

https://www.youtube.com/watch?v=Ud_OVaxCSE4
Close

Magnolia’s Hope The Documentary

Copyright 2020 All rights reserved Theme: Blog Expert by Themeinwp