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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Tag: specialneeds

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Diagnosis: uncertainty

October 8, 2020October 8, 2020 Jenny Tesler1 Comment

We have all known life is uncertain, but 2020 has really handed us uncertainty on a silver platter. If anything Covid has given the world a glimpse into our lives. The entire world is contemplating medical uncertainty, a range of Continue Reading

Tagged awareness,october,raredisease,Rett syndrome,rettsyndromeawareness,seizures,specialneeds,specialneedsfamily,specialneedsparenting
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The drastic swing of a pendulum

February 8, 2019 Jenny Tesler1 Comment

Newton’s 3rd law states…”For every action there is an equal and opposite reaction”. I’m starting to think that pertains to our life right now. Whenever our life swings in one direction, its not very long that it seems to swing Continue Reading

Tagged #rettsyndrome,breathing issues,drastic,iamable,pendulum,specialneeds,swing
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Waves of crashing emotions

January 31, 2019 Jenny TeslerLeave a comment

If we get to sleep, I usually wake up positive. This has been a big shift for me over the past five years. I didn’t use to wake up positive. Honestly, I was living in a fog. The fog of Continue Reading

Tagged #rettsyndrome,breathingdifficulties,cure,dinghy,disability,dystonia,hope,seizures,specialneeds,treatment
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Diagnosis Day – Five years later

December 17, 2018 Jenny TeslerLeave a comment

On December 17, 2013, Magnolia was diagnosed with Rett Syndrome. That was five years ago. So much has happened in the last five years – Rett has progressed, science has gotten closer to a cure and we have gotten stronger. Continue Reading

Tagged #rettsyndrome,diagnosis,disability,iamable,seizures,specialneeds,warrior
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Home School

December 5, 2018December 31, 2018 Jenny Tesler1 Comment

There are so many reasons we love the Virtual Academy homeschool program for Mags. Her schedule is flexible, her health is better (colds, flus, viruses, not Rett not yet) it really has been a good program for her. The best Continue Reading

Tagged #rettsyndrome,childhood,harrypotter,harrypotterworld,inclusion,magic,specialneeds
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Magic, Unicorns and Cupcakes

November 16, 2018 ajtesler1 Comment

In our life, everything isn’t magic, unicorns and cupcakes. We just do our best to make sure our kids are enjoying themselves and hope the rest will come from there. Maggie turned 8 this past weekend and that brought a Continue Reading

Tagged #rettsyndrome,birthday,butterbeer,cupcakes,harry potter,hogwarts,magic,sensoryissues,specialneeds,unicorns
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Let’s talk yoga

October 15, 2018October 15, 2018 Jenny Tesler1 Comment

Why we do yoga… Yoga has been a part of my life for awhile. I’ve taken yoga classes off and on for the past twenty years. I’ve always loved it as a workout. When Magnolia was 2 years old, I Continue Reading

Tagged #rettsyndrome,chanting,occupationaltherapy,physicaltherapy,specialneeds,specialneedsyoga,talk,therapeuticyoga,therapy,yoga,yogatherapy,yogi
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What being 2 1/2 years old means to us… two realities

September 20, 2018September 20, 2018 Jenny TeslerLeave a comment

I can’t tell you how many times I’ve been asked, “Do you see how well Gray is doing?” “Isn’t it exciting how well he is doing?” “Have you noticed how well he is doing?” I think these are all questions Continue Reading

Tagged #magnoliashope,#rettsyndrome,complexdisorder,growth,milestones,sibling,specialneeds,specialneedssiblings

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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