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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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  • <---- The Documentary
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    • Magnolia’s Hope on Youtube
  • About Rett
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  • Shop Magnolia’s Hope

Its been awhile

Hi! Its been awhile. Life has been a rollercoaster. This past year we have had the exciting news that two different gene therapy trials have started. YAY! Magnolia is loving

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Words we have been waiting for….

                           US THEN 2016   , The words we have been waiting for... FDA approves Trofinetide for treatment

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How to turn your Iphone into an Eye Gaze Communication Device

So, a super cool new function of IPhone is head track switch control which allows any IPhone device to be turned into an eye gaze communication device, plus it allows

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I am happy Magnolia thinks I’m annoying

A week ago, we forgot Magnolia's eye gaze technology computer at home when we went to visit the grandparents for a night. Unfortunately, we remembered on the drive to their

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Surfer girl

A week of surf camp was not enough. What an unexpectedly amazing week we had in Long Beach, NY. Magnolia has always loved surfing, we have been getting adapted surf

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How did this happen

December 21, 2013 ajteslerLeave a comment

We knew something was wrong with her.  We’ve known for awhile.  We just didn’t know it was this something and we didn’t know it was this bad.  We’re looking at a lifetime of taking care of her unless a cure Continue Reading

Tagged early intervention,early stages,hope,rett
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Diagnosis

December 21, 2013 ajteslerLeave a comment

Up until today we thought we were dealing with apraxia.  We thought with intensive speech therapy she’d get better.  Up until today we thought we were on the road to recovery.  Instead, we learned we’re on a much worse road Continue Reading

Tagged intensive speech therapy,neurological disorder,Rett syndrome,Rett syndrome symptoms

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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Magnolia’s Hope Documentary (Official Teaser)

https://www.youtube.com/watch?v=Ud_OVaxCSE4
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