Every time I try to play a game that I would play with a typical 3 year old, our little one ignores it. No block building, hide and seeking, peek a booing, puzzle solving, pat a caking, red rovering, freeze Continue Reading
Unreal
As I reflect on 2013 I can’t help but realize how unreal the diagnosis is. As I look forward to 2014, I can only hope the decisions I make for her and for our family lead us on a path Continue Reading
New year’s
I think it’s safe to say I’m welcoming the end of the year with open arms. 2013, while great for me professionally was one of the hardest years imaginable in my personal life. Looking over our application for a clinical Continue Reading
Christmas
Christmas is fun because you’re with family and you can just relax. This Christmas was different though, since it was the first one after the diagnosis. We were all a little zoned out and I was very aware of the Continue Reading
Talking to people about it
I think one of the harder things is talking about it. With so much uncertainty it’s hard for me to explain what we are dealing with to other people. How do you explain to people that the only thing that Continue Reading
Family support
Apparently the Rett family support system is very good. And it should be. It needs to be. With so few families going through this, any connection is a much needed exercise in shared experiences. I reached out to my local Continue Reading
Flying to Texas
The airport was easy enough. All she wanted to do was run around. The irony is not lost on me that were going to get her evaluated by Rett specialists and all she wanted to do was run, considering there’s Continue Reading
Family time
We were already planning on heading to Texas to see my wife’s family for Christmas and it couldn’t have come at a better time. We definitely need to be around family right now and so does the little one. Hopefully Continue Reading
Disney Land
We went to Disney today. It was a way to get away from it all. It’s hard seeing other typical kids running around, enjoying the park, knowing our little one will never really be able to. But, she had fun. Continue Reading
We will win this
24 weeks ago – after months of asking the questions of ourselves, of our doctors, of our friends- our pediatrician suggested we get our two and a half year old evaluated for autism. 18 weeks ago we found out that’s Continue Reading
