Skip to content
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope
Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

Primary Menu
  • <---- The Documentary
  • Home
  • Subscribe
    • Follow us on Instagram
    • Like us on Facebook
    • Follow us on Twitter
    • Magnolia’s Hope on Youtube
  • About Rett
  • Donate to the Cause
  • Shop Magnolia’s Hope

Tag: wheelchair

  • Home
  • wheelchair
Uncategorized

Palm Springs

October 21, 2014October 18, 2014 ajteslerLeave a comment

A couple of weeks ago, we took a little weekend trip to the desert because nothing says relaxing like 109 degree temperatures.  It started out auspiciously with Maggie unable to calm her body, communicate her wants or regulate her body Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Hand over hand battle

July 14, 2014August 2, 2014 ajtesler5 Comments

For the longest time it has felt like we were losing the battle with hand function.  Stopping any more loss of functions for Maggie has been yet another one of our primary goals, since the diagnosis.  We spend most of everyday, Continue Reading

Tagged #magnoliashope,#rettsyndrome,battle,coping,cure,diagnosis,feeding tube,hand,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

The Houston Report

June 30, 2014August 2, 2014 ajtesler2 Comments

This trip to Houston was a little different than the last one.  At the last one we were nervous and everything turned out as good as could be expected.  This time we weren’t nervous and we didn’t feel like it Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Back to Houston

June 16, 2014August 2, 2014 ajtesler1 Comment

After a really great and relaxing week spent with family, swimming every day and getting eaten alive by mosquitos, we’re going back to Texas Children’s Hospital in Houston today – the mecca for Rett research.  We’re going to see Maggie’s Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Playing With Others

June 10, 2014August 2, 2014 ajtesler3 Comments

It’s been a regular struggle to get her to play with other kids.  When she was younger, before the regression, she would play near them, but not necessarily with them.  And when she started tossing sand out of the sand Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Back to work

June 4, 2014August 2, 2014 ajteslerLeave a comment

Rett Syndrome has changed my life in so many ways.  Before the diagnosis, I was working at Jash, the digital studio that Sarah Silverman, Michael Cera, Reggie Watts, Tim and Eric started along with a bunch of other people I’ve Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Mad scientist hyphenate / Producer

May 26, 2014August 2, 2014 Jenny TeslerLeave a comment

A blog written by my wife, Jenny.  She is smarter and funnier than I am, so enjoy. When I wake up everyday, I usually pause, take a breath and hope for the best. The truth is we really don’t know Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Special thanks.

May 19, 2014August 2, 2014 ajteslerLeave a comment

When Maggie was first born, our friends Dan and Rachel visited regularly, and made it a point to be a part of Maggie’s life; and Maggie (and the two of us) loves them for it. Her OT still talks about Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

The little victories

May 12, 2014August 2, 2014 ajteslerLeave a comment

Maggie has days where everything seems to be connecting.  She climbs better, she uses her hands more and she communicates more.  Then there are other days that nothing seems to connect.  This is the Apraxia part of Rett.  We never Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair
Uncategorized

Butterfly day

May 5, 2014October 18, 2014 ajtesler2 Comments

One thing that I can always count on with Maggie is that if something doesn’t go as planned, it affects the entire day.  I was alone with Maggie all weekend and thought going to our local children’s museum would be Continue Reading

Tagged #magnoliashope,#rettsyndrome,coping,cure,diagnosis,feeding tube,hope,Magnolia,rare disease,Rett syndrome,special needs,wheelchair

Posts navigation

Older posts

Collaborative Blogging

AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

Subscribe for updates

(Un)Subscribe to Posts

Magnolia’s Hope Documentary (Official Teaser)

https://www.youtube.com/watch?v=Ud_OVaxCSE4
Close

Magnolia’s Hope The Documentary

Copyright 2020 All rights reserved Theme: Blog Expert by Themeinwp