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Magnolia's Hope

They thought they would teach their daughter about the world Instead they have to teach the world about their daughter

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Off on a solo adventure

October 14, 2019June 26, 2020 ajtesler1 Comment

I have mixed emotions when I travel away from Jenny, Maggie and Gray.  On one hand, things are hard at home and it’s a struggle to stay on top of everything when both of us are home, making me feeling Continue Reading

Tagged adventure,solo
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Let’s play ball!

June 29, 2019July 2, 2019 Jenny TeslerLeave a comment

Summer has begun for everyone, at least in our hemisphere. On social media I have seen families sending their kids off to camps, going on family trips and also just swimming by the pool.  It’s been a tough few months Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,begins,hope,rare disease,reverserett,summer
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Should we go to the ER?

May 30, 2019May 30, 2019 Jenny TeslerLeave a comment

I’m not sad. I’m angry with Rett Syndrome.  We are in a very strange and confusing place as parents – not just parents of a beautiful child with special needs; not just parents of a brave girl with Rett Syndrome; Continue Reading

Tagged #magnoliashope,#rettsyndrome,adventure,awareness,coping,cure,epilepsy,feeding tube,special needs
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The Long Weekend

April 25, 2019April 25, 2019 ajtesler9 Comments

Maggie is a full time job.  Technically she’s a full time job for 3 people.  And even then, it’s a lot.  This weekend, Jenny took Grayden out of town for his spring break.  I can only assume they’ve been busy Continue Reading

Tagged long,weekend
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The Aruba nightmare

April 5, 2019April 5, 2019 Jenny TeslerLeave a comment

Before Rett Syndrome, before hospital visits and a scary diagnosis. We were just a tiny family dealing with ordinary issues. I thought I would do a flashback post to when Magnolia was one year old and we went to Aruba. Continue Reading

Tagged #rettsyndrome,adventure,aruba,CDC,family,familylife,nightmare,Norovirus,vacation
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Beautifully brutal or brutally beautiful…

March 12, 2019 Jenny TeslerLeave a comment

Sometimes the smallest of moments show us the beauty of life. Those same moments can also be heart wrenching. I had one of those moments this past weekend. It was simple, it was nothing, it was beautiful, it was brutal. Continue Reading

Tagged #rettsyndrome,beautifully,brutal,complex,curerett,iamable,milestones,needs,raredisease,reverserett,special
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The drastic swing of a pendulum

February 8, 2019 Jenny Tesler1 Comment

Newton’s 3rd law states…”For every action there is an equal and opposite reaction”. I’m starting to think that pertains to our life right now. Whenever our life swings in one direction, its not very long that it seems to swing Continue Reading

Tagged #rettsyndrome,breathing issues,drastic,iamable,pendulum,specialneeds,swing
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Waves of crashing emotions

January 31, 2019 Jenny TeslerLeave a comment

If we get to sleep, I usually wake up positive. This has been a big shift for me over the past five years. I didn’t use to wake up positive. Honestly, I was living in a fog. The fog of Continue Reading

Tagged #rettsyndrome,breathingdifficulties,cure,dinghy,disability,dystonia,hope,seizures,specialneeds,treatment
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Traveling and kindness

January 7, 2019January 7, 2019 Jenny Tesler3 Comments

We love to travel. It has been immensely harder for us the past five years. Since flying became so hard,the past couple of years we have really tried to incorporate more family adventures that involved driving. We have had some Continue Reading

Tagged #rettsyndrome,adventure,Choosekind,familyadventure,reverserett,specialneedsparenting,travel
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2018: A Year in Review

December 31, 2018December 31, 2018 ajtesler1 Comment

Every year that passes is a reminder of how far we’ve come and how far we are yet to go.  The one thing that 2018 was about for us was focusing on living instead of hoping.  We are still optimistic Continue Reading

Tagged 2018,review,year

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AJ and Jenny Tesler

When their daughter was diagnosed with rare neurological disease, Rett Syndrome, they promised her they would do everything they could to find a cure and help her live the best life she could. It was then that Magnolia's Hope was born.

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