They thought they would teach their daughter about the world Instead they have to teach the world about their daughter
https://youtu.be/nov-LgyOidg When we were first told about Rett Syndrome the doctor suggested we start immediately on Speech Therapy, Occupational Therapy, Physical Therapy and Hippotherapy. While the first three were familiar, Hippotherapy was not. “It’s horseback therapy,” we were told. “For Continue Reading
Guest blog – submitted by my brother Steve Tesler with help from Maggie’s cousins, Leo and Zeke Tesler. So grateful to have a village of people who go the extra mile. https://youtu.be/y6LflUvtPCg Every December for the past couple of Continue Reading
https://youtu.be/eFKRFlljg-k We’d wanted to have a baby since Maggie was 1. I have two brothers (much older) and Jenny has a sister (close in age) and we’re both very appreciative of the relationships we have with our siblings. They challenge Continue Reading
https://youtu.be/PJuUpDefrhY I wanted to put a go pro on her and show what it’s like to be Maggie. This was supposed to be a follow up to the communication video from last week. It was supposed to show how engaged Continue Reading
Talking to a non-verbal kid is a complicated endeavor. They can’t talk and so we don’t listen. But what we’ve learned is that they do talk. She doesn’t use words. She doesn’t use hand gestures (consistently) but she does talk. Continue Reading
We’ve talked a lot about how great the Tobii is and how phenomenal it is to hear her thoughts. The thing that we don’t really talk about is the limiting nature of it as well. The amount of words she Continue Reading
When Maggie was first diagnosed we delegated responsibilities – I was going to work with her on physical gross motor stuff. Shelly, Maggie’s aide, was going to focus on fine motor stuff and Jenny was going to focus on Continue Reading
Christmas day. 2015. End of Leg 1 of our two week vacation. We all sit around the living room of my in-law’s house, opening presents, sharing the last moments of togetherness before we head out on the next leg Continue Reading
In Los Angeles, everything shuts down for the final two weeks of the year, as everyone escapes back to their family or goes on vacation. We’re fortunate to be able to do both most years. We typically spend Christmas in Continue Reading
Last week I wrote about the science and how far it’s progressed. This week I wanted to reflect on how Maggie has changed, how much she has accomplished, how Rett Syndrome continues to affect her and how she continues to Continue Reading
